DIMACS Working Group on Privacy / Confidentiality of Health Data

December 10 - 12, 2003
DIMACS Center, CoRE Building, Rutgers University, Piscataway, NJ

Organizers:
Rakesh Agrawal, IBM Almaden, ragrawal@acm.org
Larry Cox, CDC, lcox@cdc.gov
Joe Fred Gonzalez, CDC, jfg2@cdc.gov, chair
Harry Guess, University of North Carolina, harry_guess@unc.edu
Tomas Sander, HP Labs, tosander@exch.hpl.hp.com
Presented under the auspices of the Special Focus on Communication Security and Information Privacy and
Special Focus on Computational and Mathematical Epidemiology.

Subgroup meeting DIMACS Working Group on Data De-Identification, Combinatorial Optimization, Graph Theory, and the Stat/OR Interface.


Workshop Program:

Wednesday, December 10, 2003

Session I: Scope and Purpose of Privacy/Confidentiality of Health Data
 	 
 7:45 -  8:30   Breakfast and Registration

                Moderator: Joe Fred Gonzalez, Jr., ORM, NCHS, CDC 

 8:30 -  8:40	Welcome and Introductory Remarks
                Fred S. Roberts, Director of DIMACS
 
 8:40 -  9:20   Overview of Statistical Disclosure Limitation
                Lawrence H. Cox, Associate Director, ORM, NCHS, CDC

 9:20 -  9:30	Discussion

Session II: Government Regulations for the Release of Health Data and Implications for Research 

 9:30 -  9:40 	"Context Setting" of Session II
                Harry Guess, UNC 

 9:40 - 10:10	Legal and Regulatory Framework in the United States 
                and the European Union
                Oliver Johnson, Merck and Co., Inc.

10:10 - 10:20 	Discussion

10:20 - 10:40	Break
	
10:40 - 11:10	The Health Insurance Portability and Accountability Act (HIPAA)
                and its Implications on Epidemiological Research 
                Using Large Databases
                K. Arnold Chan, Harvard University

11:10 - 11:20 	Discussion

11:20 - 11:50	Health Care Databases under HIPAA: Statistical Approaches 
                to De-identification of Protected Health Information  
                Judith Beach, Quintiles Transnational  

11:50 - 12:00   Discussion

12:00 -  1:15	Lunch

 1:15 -  1:45	Protecting the Privacy of Healthcare Data While Preserving the Utility 
                of Geographic Location Information for Epidemiologic Research
                Daniel Barth-Jones, Center for Healthcare Effectiveness Research and  
                Department of Medicine, Wayne State University, School of Medicine	

 1:45 -  1:55	Discussion

 1:55 -  2:25	Privacy Technologies and Challenges in their Deployment
                Tomas Sander, HP Labs

 2:25 -  2:35	Discussion

 2:35 -  2:55	Break 

 2:55 -  3:55 	Software Demonstration of the use of Hippocratic database 
                technology in supporting a health care provider. 
                The demo scenario mimics the requirements placed by HIPAA
                Tyrone Grandison, IBM   

 3:55 -  4:05	Discussion
 
 4:05 -  4:35	Cryptographic Techniques for Confidentiality of Aggregate
                Statistics on Health Data
                Giovanni DiCrescenzo, Telecordia

 4:35 -  4:45	Discussion

 4:45 -  5:15	Open discussion of future plans and goals for the working group

 5:30		Van back to hotel

 7:00 -  9:00	Reception and dinner at Four Points Hotel 


Thursday, December 11,  2003

 9:00 - 10:00	Tutorial on Data Mining
                David Madigan, Rutgers University

10:00 - 10:10	Discussion

10:10 - 10:40	Break

10:40 - 11:10	Using Data Mining Techniques to Harvest Information
                from Clinical Trials
                Richard D. De Veaux, Williams College, Williamstown, MA. 

11:10 - 11:20	Discussion

11:20 - 11:50	Experimental Results on Privacy-Preserving Statistics Computation
                Rebecca Wright, Stevens Institute of Technology 

11:50 - 12:00	Discussion

12:00 -  1:30	Lunch

 1:30 -  2:00	Semantic Web Services for Privacy/Confidentiality of Health Care Data
                Nabil Adam, Rutgers University

 2:00 -  2:10 	Discussion

 2:10 -  2:40	Privacy/Confidentiality Issues in Collecting Agricultural Data
                Gary Smith, University of Pennsylvania

 2:40 -  2:50	Discussion

 2:50 -  3:20	Break

 3:20 -  3:50	Open discussion of future plans and goals for the working group 

 5:00		Van back to hotel

Friday, December 12, 2003

 8:30 -  9:00	Private Analysis of Data Sets
                Benny Pinkas, HP Labs, NJ

 9:00 -  9:10	Discussion

 9:10 -  9:40 	Overview of Masking Schemes for Microdata 
                Jay J. Kim, ORM, NCHS, CDC

 9:40 -  9:50	Discussion 
  
 9:50 - 10:10	Break

10:10 - 10:40 	Statistical Disclosure Limitation in Tabular Data and
                Related Mathematical and Computational Problems
                Lawrence H. Cox, ORM, NCHS, CDC

10:40 - 10:50 	Discussion

10:50 - 11:20	Open discussion of future plans and goals for the working group

11:20 - 12:30	Lunch


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Document last modified on December 11, 2003.